Why being disabled on holiday can be a real pain

As a slightly less able person (spinal injury, nerve damage, chronic pain), I need to pace myself and rest more often than I would normally. I have adapted my day to day life so that I’m able to manage myself properly, take my medication when I need to, rest and exercise appropriately and generally maximise my wellness. But holidays throw that tried and tested routine out of the window leaving me in more pain, more tired and out of my medication routine.

We are on holiday in North Devon. It’s one of our favourite places to visit and we come back year after year. But from Manchester it’s a minimum 5 hour journey. This time it took 6 hours, but it has taken 8 hours in bad traffic. Sitting in one position for 6-8 hours is bad for anyone, but with my ruined spine it gets very uncomfortable, then very painful and it takes days to recover from.

Once we get there, put me in an unfamiliar bed and I’m gobbling painkillers like they’re smarties. Combine that with a lack of routine, longer than usual walks which are usually on the beach on sand, shale or pebbles which are hard to walk on its all a bit ouchy. At home I can plan my week, if I’ve got an active day then I’ll make sure I’ve got a rest day after it. On holiday every day is an active day.

So what do my holidays look like? My holidays look like car parks. I often have to just sit in the car and rest while my painkillers kick in and the boys race off to do their thing. It makes me a bit sad that I can’t fully participate in holiday activities, but then I can’t always participate in normal life activities either. Stop moaning kid, these are the cards you’ve been dealt. Live with it.

Reading this back it makes me wonder why I bother going on a UK holiday at all. But it’s beautiful here and although I’m half cut on prescription painkillers most of the time, it’s nice to spend time with the boys, to get some sunshine and sea air and to take the boys out of their routine for a while. It’s hard enough being me and living with my limitations, it must be equally hard for them, so they deserve a holiday and a chance to relax and be free from my routine for a week or two.

Disabled on holiday

North Devon: so beautiful, but you can only access this beach via a cliff path.

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