Tag Archives: disability

Broody but broken – Why I can’t have a baby

I have a son, he was planned. He is an only child, that bit wasn’t planned.

I’d always thought I didn’t want children, I think I thought that because I’d always felt that I probably wouldn’t be able to get pregnant and if by some miracle I did, I’d probably be a rubbish parent anyway, that it wasn’t worth considering. I was wrong on both counts.

I got pregnant quite quickly; I was 34 when I had my baby and the pregnancy was the polar opposite of plain sailing. Despite the fairly terrible time I’d had, I knew as soon as I held him in my arms that I wanted more babies.

Life doesn’t give you do-overs, but looking back, I should have started trying for another baby as soon as I was physically ready, maybe a year after he was born. I waited, I regret waiting, and now I always will.

Fate intervened and put me flat on my back for the best part of a year. I couldn’t look after myself let alone my child. Two back surgeries, enough codeine to sink a battleship and a slow slide into depression scuppered pretty much everything in my life. I had to give up my job and change the way I lived almost entirely.

I look back at my old career and at times I do feel a tiny twinge of regret at its loss. In many ways I’m much happier now doing what I do. The thing I regret most is not being able to have any more babies.

My ovaries are screaming at me all the time. My body wants to be pregnant as much, if not more than my brain does. The getting pregnant bit probably wouldn’t be too much of a problem, it’s the being pregnant, the birth bit and then the looking after the baby bit afterwards. I’m 39 and some mornings I need help getting dressed.

My son is an only child, my accident has robbed him of a fully functioning mother and the chance of having siblings. I feel incredibly guilty about that and I worry that he’s lonely at home without someone more of his own age to play with.

So many of my friends are pregnant or they have new babies and I am delighted for them. I think most of them are sensitive enough to know that I’m struggling with this a little bit, and they’re kind enough to let me have extra cuddles with their little ones.

It’s a strange feeling knowing that everything that you need to get pregnant is fully functioning and raring to go, but that the rest of the body around that it is broken and incapable. I try really hard not to let my physicality get me down, but this, this is the one thing that bothers me the most, and the only thing I ever cry tears of self pity about.

I want a baby so much, I’d love to have that lovely round belly again, feeling little kicks inside me and sharing the excitement of the growing baby with my son. It’s a feeling I know I’ll never experience again and I could kick myself for leaving it so long to start a family. But what’s done is done. I’m just grateful that I got it right first time and made (to my mind anyway) the most beautiful boy in the world.

I can't have a baby

Why being disabled on holiday can be a real pain

As a slightly less able person (spinal injury, nerve damage, chronic pain), I need to pace myself and rest more often than I would normally. I have adapted my day to day life so that I’m able to manage myself properly, take my medication when I need to, rest and exercise appropriately and generally maximise my wellness. But holidays throw that tried and tested routine out of the window leaving me in more pain, more tired and out of my medication routine.

We are on holiday in North Devon. It’s one of our favourite places to visit and we come back year after year. But from Manchester it’s a minimum 5 hour journey. This time it took 6 hours, but it has taken 8 hours in bad traffic. Sitting in one position for 6-8 hours is bad for anyone, but with my ruined spine it gets very uncomfortable, then very painful and it takes days to recover from.

Once we get there, put me in an unfamiliar bed and I’m gobbling painkillers like they’re smarties. Combine that with a lack of routine, longer than usual walks which are usually on the beach on sand, shale or pebbles which are hard to walk on its all a bit ouchy. At home I can plan my week, if I’ve got an active day then I’ll make sure I’ve got a rest day after it. On holiday every day is an active day.

So what do my holidays look like? My holidays look like car parks. I often have to just sit in the car and rest while my painkillers kick in and the boys race off to do their thing. It makes me a bit sad that I can’t fully participate in holiday activities, but then I can’t always participate in normal life activities either. Stop moaning kid, these are the cards you’ve been dealt. Live with it.

Reading this back it makes me wonder why I bother going on a UK holiday at all. But it’s beautiful here and although I’m half cut on prescription painkillers most of the time, it’s nice to spend time with the boys, to get some sunshine and sea air and to take the boys out of their routine for a while. It’s hard enough being me and living with my limitations, it must be equally hard for them, so they deserve a holiday and a chance to relax and be free from my routine for a week or two.

Disabled on holiday

North Devon: so beautiful, but you can only access this beach via a cliff path.

Dealing with chronic back pain

I live with chronic back pain. Since November 2012 there hasn’t been a day I haven’t had to take painkillers. It could make me really unhappy if I let it, but I refuse to be beaten down by my chronic pain.

Specifically I had a problem with my L2/L3 disc which is in my lower back. I had a discectomy which is the surgical removal of herniated disc material that presses on a nerve root or the spinal cord, in my case it was pressing on both. I was unlucky and the disc herniated again a few months later and I needed a second surgery. Then five months after that it completely herniated, though that hasn’t been surgically removed. I now have no disc and I am always in pain. 

I am used to the pain now, the creeping numbness in my lower body worries me more than the actual pain. I can’t stand for long, I can’t bend well and I can’t lift anything. I’ve not picked my son up and swung him around since he was two, and when he falls over I can’t scoop him up for a cuddle. These are the things that bother me more than my pain.

Dealing with chronic back pain means that in order to be able to have some level of functionality you need to make some changes in your life. It would be very easy for me to sit down and stuff myself with painkillers and just waste away. I could get benefits and financial support, but I’m choosing to do what I can, whilst I can and hope that the help I may need in the future is still there for me. I am unable to work in a “proper job” and so I am now a freelance copywriter working from home

These are some of the things I do to be able to function alongside my pain levels. I know that some days I just need to wave the white flag and take the pills and go to bed, but thankfully those days are few and far between.

Prescription Pain Relief
Chronic back pain needs a proper pain management plan. I have a lovely GP who listens and makes good suggestions. When I was having my surgeries I was on all the pain relief humanly possible, and having lived in that dreamy fog for nearly a year I am quite keen to be on the lowest dose of whatever I’m on. I don’t want my body to get used to the really hard stuff and then have nowhere to go if my pain increases. 

Find a GP who will listen and support you and your choices. It may take a few months to get the medication and dosage right so you can find a balance between pain management and not feeling drunk all the time.

I shy away from straight codeine now, having had to go through codeine withdrawal. I take a prescription co-codamol, I also take naproxen which is like ibuprofen, and occasionally a diazepam which helps to relax me when my muscles are twitching or going into spasm. I’ve tried a lot of different medications, some worked, some didn’t. Some gave me thrush, or were too strong or not strong enough. Everyone is different, but once you find what works for you it will make a big difference to managing your pain.

chronic back pain

I know everyone says exercise will help but a lot of the time if you’re in pain the thought of doing some exercise is the last thing you want to do. For people like me with chronic pain and mobility issues, exercise is relative. For me I can’t do the hour long Zumba class I used to love. I don’t want to go to the gym. The exercise I do must be within the limits of what I am capable of and must not leave me feeling worse off than when I started. It’s got to loosen my stiff body a bit and it’s got to throw a couple of those happy exercise endorphins at me if possible.

The thought of schlepping off to the swimming baths does make my heart sink, but once I’m in the warm water, bobbing about, having a gentle swim, feeling weightless in the water and raising my heart rate a little, it makes me feel much better. 

Walking is also high on my agenda. I have been in terrible pain and not been able to put my own shoes on without help, but I’ve forced myself to go for a short walk around the block and returned home feeling a little looser and better for some fresh air and a change of scenery. I try and walk daily now, I have a Fitbit which helps to motive me. I know my limits, anything over 12,000 steps is going to hurt the next day but I aim for a daily minimum of 7,000. 

Some people find Pilates or Yoga useful, find what works for you and how far you can push yourself within your limits. You don’t want to be sore the next day, that’s just counterproductive, but there will be something you can do and it does help.

Positive Mental Attitude!
A lot of people say to me that they don’t know how I cope with living with chronic pain. But what other choice do I have? I refuse to let chronic pain get the better of me, I’m still alive and I’ve still, for now at least, got working legs, a brain and importantly a sense of humour. I’m a stubborn old bean and having an attitude, though not necessarily a perky, positive attitude has for me been one of the biggest things which has got me through the last three years.

I’m a great believer in fake it till you make it, and honestly it’s working. I might turn up at the school gates with a spring in my step looking bright eyed and bushy-tailed, but that’s largely the result of a lot of carefully timed medication. Speaking to a lot of the mums, some have known me for 18 months or more and most had literally no idea about my chronic pain.

People say it must get me down, it probably does but not enough so I’d recognise it. I just know when I have to rest, take my pills and behave myself for a few days. Having a positive mental attitude about my situation has been one of the most helpful things in dealing with my chronic back pain. Like I said, it’s not about being perky, for me it’s about being resolute. I can’t change what’s happened, I can’t fix it in the future, this is how things are and I’ve got to make the best of it.

Good Diet
When you take pain medication you need to make sure you eat regularly and you eat well. A lot of the painkillers like codeine (which is notorious for this) will bung you right up. If I ever take codeine I always take a senna tablet to try and negate the side effects, but a high fibre diet with lots of veggies will stand you in good stead. 

Keep your fluids up – drink plenty of water, this will also help with the codeine constipation problem. During the year of my operations, getting out of bed and going to the toilet was all the exercise I was getting, such were my intolerable pain levels back then.

If your general health is as good as you can get it then managing your chronic back pain is easier. I know if I’m ever ill it can throw off my medication schedule and lead to greater pain levels which can take days to correct.

Heat/Freeze Patches
When my lower back is feeling especially stiff and sore, rather than upping my medication I have found that sticking on a thermal patch for the day can really help ease the pain, and the focussed heat on the right spot helps to “fix” whatever is making my pain levels worse than usual. I have tried a few brands but I like the Deep Heat ones the best. I’ve recently tried using their cold patches too. It depends on what kind of pain you’ve got and what you feel would work best on it, but I really recommend thermal patches as a non-medicinal way to manage your pain. 

chronic back pain

Deep Heat also have other products you could try. I like the roll on muscle massage lotion which is good for a quick hit of relief instead of wearing a patch for a few hours. 

Take good care of yourself. Pain is exhausting, both mentally and physically, so every day you’ve got to look after yourself. Run a nice hot bath with a drop of herbal bath oil in it, have an early night or a lie in, treat yourself to a massage or a relaxing beauty treatment.

It’s a rare day I get to have a proper treatment these days, mainly for financial reasons, so I am now the master of at home pampering. I particularly rate Nelson’s Arnicare Arnica Bath & Massage Balm which you can use as a bath oil, but I think it is rather excellent to massage in.  The balm is made with Arnica combined with evening primrose, sweet almond oil, lavender and grapefruit. It’s not heavily scented, but fragrant enough to relax you. The oil sinks in beautifully and leaves no residue, I love this for soothing aches and pains and it’s excellent value for money too. 

chronic back pain

Living with chronic back pain can be all about utility, what has to be done in order to function, but you need to look after yourself. Relaxing and being pampered is for me one of the best things I can do for my back. I find that an occasional visit to the sauna or steam room can really help, the warmth penetrates my aching bones and I feel looser and much better for it. Sure, a spa day would be lovely, but your local authority swimming pool will probably have a sauna or steam room you can access for a couple of pounds.

When you’ve got chronic back pain you can feel like life is best lived wrapped up in cotton wool, I don’t hold that opinion. Ok so my trampolining days are behind me, but it’s not going to stop me living my life and enjoying myself. I know what makes me feel better and I know what makes me feel worse, so as long as I operate within those parameters I can walk the line between pain management and a normal life. 

When it comes to chronic back pain there are lots of ways to manage it, these are some of the things which work for me, they may not work for you. It’s a case of trying things out and seeing how they affect you, some will make you feel worse, some will make you feel better.

For me the key has to not let my pain dominate my life. Yes I’ve had to change my job, the way I work and how I spend my days in order to live a more functional life, but I am very happy with what my life is like now. I think my chronic back pain has given me a better perspective and a greater appreciation for things. There are upsides to everything and for me it’s better to focus on the positives. Chronic pain is really bloody awful, but it doesn’t have to define you.